Family hopes research into rare disease will help others – California News

Family hopes research into rare disease will help others – California News

At about the time their baby Liam was undergoing heart surgery, Lisa and Will McCarty saw a movie about the first child to undergo the operation 50 years earlier. The child’s parents had agreed to the experiment so that other children might live.

“What a gift that family gave to the rest of us,” Lisa said, thinking about what her family might offer future children.

When they were in high school in Fresno, Lisa asked Will to the prom, and they got married a year later. Will served in the Army National Guard, came home in one piece from Iraq and got hired by the Fresno Police Department. Lisa got a special education teaching credential. They had a bright and lovely daughter, Aviana, 11 years ago, followed three years later by Liam.

Heart surgeons at Valley Children’s Hospital in Madera worked their miracle, but Liam’s problems went deeper. He couldn’t nurse, wouldn’t look people in their eyes and didn’t hit milestones. At their…

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